Latest Updates

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I’ve not been able to post as much over the past few weeks, much to my disappointment, as I’ve got so many posts to write! We’ve been so busy with the start of the school term and many different appointments which are all helping to support Lou, which I’m very grateful for!

Today I received a report from Occupational Therapy, (after our appointment last week,) which outlined that Lou struggled with gross motor activities, often trips over things and lacks spatial awareness, something that I’d definitely agree with! It was noted how she couldn’t settle on an activity in the OT’s room and was trying to gain my attention in any way possible. I’ve noticed this before, as Lou dislikes it when I talk about her to professionals. It was interesting that the OT picked up that:

“Not all difficulties can be solely explained from a sensory basis, her emotional and behavioural response to demands placed on her or requests to comply, particularly at home also impact on her development.”

This is exactly what I’ve noticed from 18 months old and has been one of my greatest worries, there are huge behavioural and emotional problems, particularly at home. Which is the questions I’ve had about the ‘other’ factors that may accompany Sensory Processing Disorder.

I have been given some great hand-outs on Postural and Limb Control and Stability, to help with the hypermobility aspects. And the gross motor and spatial awareness. I will receive a visit from the OT next week at home, as it was so difficult for me to take in the information whilst also ensuring Lou didn’t run out of the door, which she attempted several times! The OT is also going to visit Lou at school to see how she functions there.

Today we saw Lou’s Peadiatrican, and again, Lou was extremely lively! She loved the examination couch as usual! And liked the antibacterial hand cleanser very much! We had the same behaviours as when we saw the OT with constantly trying to gain my attention by running out of the door and wanting to go to the toilet several times! We talked about the main issues on anger, aggression and frustration and about eating. It was agreed that the best way forward is to see how Lou settles in full time school hours as this will tell us a lot, with certain activities going to be put in place to release the sensory overloads throughout the day, will she still hold it all in and explode once reaching home? Lou will be seen again in January 2017, when we’ve seen her at school for a whole term. As we’ve talked about previously, there’s no doubt that Sensory Processing Disorder is there, but the next question is if this stands alone, or if indeed there is something else that’s accompanying this. It was noted that there are traits of ADHD in Lou, especially the hyperactivity, but Lou is still too young to go through the assessment for ADHD. There are also traits of ASD but again, we need to wait a bit longer to see how she gets on, as I agreed that many 4 year olds display as energetic! We need to know if this is going to carry on, or if it will settle.

To conclude, what we need to do is carry on with the visuals, visuals, visuals and take all the advice given. Looking back to that black pit that we were in last year when Lou’s behaviour was blamed on our parenting skills, (thanks for that goes to our old Health Visitor!) We have come a long way, we are now being listened to and I feel that Lou is receiving the help and support that I’ve been fighting for now for over 2 years!

2 more bits of ‘news:’

  • I’ve reached 800 Twitter followers 🙂 Massive thanks to everyone!
  • In October , as a family of 4, we are being photographed for the charity ‘Family Fund,’ to be used in their marketing materials!

 

Thanks for reading 🙂

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2 thoughts on “Latest Updates

  1. Thanks for your comment 🙂 it’s been such a busy September of appointments but very glad to be getting the support that I’ve fought for over 2 years 🙂 It helps a lot to share journeys with other parents who have experienced the same 🙂

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